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Posts Tagged ‘Liverpool Care Pathway’

A warning against apathy

This review is from: Beyond My Control: Why the Health and Social Care System Need Not Have Failed My Mother       

Beyond my control grips you by the heart strings and pulls you through a true story of frustration, anger, sadness and frequent utter despair. The book illuminates the dark corners of the overstretched, and at times entirely negligent, NHS and care services that is horrifying to witness. It follows the authors struggle to fight for her mother’s right for basic levels of care against what feels like a ruthlessly inhuman system that gripped her mother and processed her all the way to the end of life “Liverpool Care Plan”.

The book not only functions as a captivating modern story of a tragic struggle against ‘the system’ but serves to highlight the dangers threatening anyone in the receipt of care. The book introduces the authors mother from the outset, without relying on an unnecessary back story to the authors relationship with her to artificially pump the emotional impact of the book. The gravitas is in the eloquent and accurate recounting of the events leading to the mother’s death, allowing the genuine horror of the situation to serve as an honest vessel through which the message of the book is conveyed.

There are numerous moments in the book where your jaw will drop in shock at the 21st century care sector. If you think that we live in a transparent world where every action is taken to meet the basic standards that we expect for our loved ones in receipt of care, you are wrong. During your read, you will witness lying, negligence and carelessness at every level in the care and health services.

It is impossible not to feel great empathy with the authors frustration and sadness as she tries everything she can to improve the care for her mother. The feeling of hopelessness as the author repeatedly tries to rectify substandard care is suffocating at times as she is brushed off, ignored or just told her concerns will be ‘looked into’. The sense of the needless loss of life is incredible. The mother was admitted into hospital for a broken leg (as the result of negligent care), and through further hospital negligence and staff failing to follow the care plan, a pressure sore develops. We are left with a bitter taste in our mouths when the mother finally passes away in agony.

If you are a carer, in the receipt of care, or know anyone going through a similar situation, this book is highly recommended. The author does a great job of not only sharing her story, but giving you the tools and knowledge you need to best protect yourself and loved ones from negligence, which is summarised in convenient ‘what you need to know’ sections at the end of various chapters. While it is harrowing, it will certainly show you how important good quality care is and give any carer that works to good standards a sense of pride. In all, the greatest thing one can take away from this book is a warning against the apathy that exists throughout society when it comes to care standards. The author vocally rebels against this attitude from the outset reminding us that “accidents do not happen.”

http://www.amazon.co.uk/Beyond-My-Control-Health-Social/dp/1781610282/ref=la_B0037DXY46_1_1?s=books&ie=UTF8&qid=1385637071&sr=1-1

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“I’m doing an early hours reading session. This is so heart wrenching. I am very surprised at my overly emotional response thus far. It’s hard to concentrate on as I find that my emotional response is quite profound, so I end up rereading lots of bits. I’m really struggling just to write this  message due to emotional brain fuzz. My mind wanders to thoughts of you at the time, my own parents and wishing I could have been more helpful. I want to say sorry but I’m not really sure what for. This will be a most emotive read. Heroic effort writing this Suzan, you have my most sincerest respect. Sorry for rambling in a most unmasculine manner. I will continue reading now.”

“I finished it but I’m going to reread the last 2 or 3 chapters again in a moment though because I found my mind wandering about abuse and “what if’s”. It’s the sign of a thought provoking book.”

http://www.amazon.co.uk/Beyond-My-Control-Health-Social/dp/1781610282/ref=la_B0037DXY46_1_1?s=books&ie=UTF8&qid=1384098531&sr=1-1

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