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Posts Tagged ‘dignity’

GREAT NEWS! My book, ‘Beyond My Control: Why the Health & Social Care System Need Not Have Failed My Mother’ is shortlisted for THE PEOPLE’S BOOK prize.

If you think my book is a worthy winner please vote before November at http://www.peoplesbookprize.com/section.php?id=2 Thank you.

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Dementia

‘UK’s dementia care betrayal: Nine in ten care homes and hospitals fail patients, says damning report

  • CQC review finds widespread neglect, lack of care and poor training
  • They found that 90% had some aspect of poor or inconsistent care.’                                                                                                                                    Daily Mail 13th Oct 2014

Reading this is worrying but not a surprise. We’re hearing more now about poor care. It can be very stressful if you need to find a care/nursing home for your loved one with dementia, a care/nursing home that provides care and support with a dedicated staff team.

But as we read above, there is ‘a staggering 90 per cent of the care homes and hospitals inspected found to have aspects of variable or poor care’. So where does this leave us for who are trying to find a good care home for our loved one. And why is this happening?

I have seen great staff across the country who genuinely care for those they support. They are dedicated and provide person centred support, and many a time work long hours due to staff shortages/sickness. I have also seen staff that have delivered poor care. Sometimes, it’s not their fault. The staff/client ratios in these large homes are minimal and it would be helpful for the Care Quality Commission to bring in a minimum number of clients to staff ratio. The former Commission of Social Care Inspection [CSCI] had this.

Dementia is a specilised area and need staff who are trained to support people with dementia. It is not good enough to receive training on how to support older people, training is needed on how to support individuals with dementia. People can live well with dementia, but only if staff have the knowledge on how to support the individual to do this.

Is a care/nursing home needed for the individual with dementia or can they be supported at home, with a Personal Budget? [Personal budgets give you flexibility in how your care needs are met.]

What is needed in a care/nursing home to enable a person with dementia to be cared for, and be safe? As a minimum this is needed:

The care assessment completed prior to going into the care/nursing home needs to give an accurate full description of the individual’s needs.

We need to get the right quality of care. Staff to be recruited who genuinely want to care and support others [not those who see it as ‘just a job’].

High turnover rates lead to lack of continuity. Do the managers carry out an Exit Interview with staff to see why they’re leaving? If they did, this may help them see the reasons and if the reasons are to do with the Home then the manager can look to rectify this.

Money available to train staff in this specialised area and this money to be used for training and nothing else.

Time for staff to complete training.

Staff to discuss with their supervisor/manager afterwards to see if the training met their need.

Good client staff ratio on shifts.

Time for staff to carry out best practice [and not cut corners due to short staffing].

Senior on shift to lead the shift, monitor, observe and discuss poor practice if apparent.

Staff to receive regular 1-1 confidential supervision sessions where training needs are identified, performance discussed, feedback given and concerns shared.

Staff to be able to express their concerns without fear of reprisal or losing their job.

What makes a good care/nursing home?

Many care/nursing homes can look grand from the outside, and sometimes on the inside too. But this doesn’t necessarily mean that they pay the same amount of time cleaning the place to supporting the people who live there.

Some of the things I feel should be in place:

Care/support plans are individual to the person [and not the same as everyone elses]. The plans should take in the uniqueness of the individual, their interests, abilities, needs and preferences.

Staff must treat individuals with dignity and respect.

Systems should be in place to help the individual with choices. This can be objects to refer to or pictures/photographs.

Dedicated and trained staff team.

Keyworker system in place.

Good leadership and support for staff.

Clients and family are listened to.

House meetings where the people living there are able to express opinions and make suggestions for their home.

Happy, relaxed atmosphere.

Activities for the individual to choose if s/he wishes to participate.

Useful websites:

Alzheimer’s Society http://alzheimers.org.uk/

Age UK http://www.ageuk.org.uk/

Health Watch http://www.healthwatch.co.uk/

The Silver Line http://www.thesilverline.org.uk/

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‘By 2015 there will be 850,000 people with dementia in the UK, and today’s social care systems are not equipped to cope

We are all living longer and that is something to celebrate. A third of babies born today are expected to reach their 100th birthday. But are older people living well? Already that is debatable, and the future is clouded with uncertainty.

Our health and social care systems are antiquated and no longer fit for purpose, with vulnerable older people drawing the short straw. When the NHS was set up it was there to treat outbreaks of tuberculosis and measles, to see women through childbirth and children with whooping cough. Today, the majority of service users are older people with multiple long-term conditions. Seven out of ten people with dementia have another long term condition and require care and support from a range of different professionals.

Today the NHS is too often seen as just the hospital – the visible sign of health care in the town. But the community support that should be there to help people live well at home is hidden. We take an overly reactive approach, rewarding crisis admissions to hospital rather than delivering on the outcomes that matter most to people.

Alzheimer’s Society recently published new research which brought the disparity between the services we have and those we need into sharp focus. It found that by 2015 there will be 850,000 people with dementia in the UK, more than ever before. The cost of this unfolding epidemic has hit £26bn a year, a price tag which is set to rise alongside the rising numbers. Most striking of all this is that people with dementia, their carers and families are shouldering two-thirds of this cost themselves.

The post second world war settlement of cradle to grave health care which is free at the point of delivery must remain. But today’s needs are as much about social care. We need new and flexible models of delivery where the emphasis is on building services around individuals, not institutions. For decades the closer integration of health and social care has been a goal of public policy, but we have yet to see its effective translation.

Fundamental to living well in older age is maintaining health and independence. This winter the crisis in NHS funding will once again be centre stage. But for many years, there has been a crisis in social care. Make no mistake: the services that support older people, often the most vulnerable, are on the verge of meltdown.

This is why the Ready for Ageing Alliance has created a manifesto calling on policymakers in government and beyond to start engaging seriously with the trend towards longer lives. The alliance formed in 2013 following publication of the Filkin report and its conclusion that we as a country were nowhere near ready for an ageing population. The aim of members Age UK, Alzheimer’s Society, Anchor, Carers UK, Centre for Policy on Ageing, the International Longevity Centre – UK , Independent Age and Joseph Rowntree Foundation is to make the case for action to ensure that our society makes the most of our ageing population.

The manifesto sets out detailed recommendations for public policy covering housing; health & social care; the economy and communities and calls for government to take the lead.

It calls for us to stop seeing ageing as being just about older people – if we wait until we are 60 or 70 to prepare we’ll have left it too late. We believe everyone aged 50 should be sent a pack giving information and advice.

At the core of the failings of our health and social care system is ageism. Older people are too often treated like second class citizens. Legislation has gone some way to preventing discrimination on grounds of age, but bizarrely financial services are exempt and hidden discrimination remains in many walks of life.

It’s vital we stop operating hospitals on a model designed for the past. Staff and patient ratios on hospital wards for older patients are often lower than on general wards. This makes little sense given that older people often need more help and care. Two thirds of hospital beds are currently occupied by a person with dementia. People living with the condition have even further complex needs which must be taken into consideration.

2015 is the year of a general election. While the question of who will be in government remains to be decided, one of the greatest challenges that they face is already set. By 2051 we can expect to have two million people with dementia in the country. Now is the time for government to wake up and realise prevention can be the best cure.’

http://www.theguardian.com/social-care-network/2014/sep/16/services-supporting-older-people-verge-meltdown

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Improve the standard of residential, domiciliary and hospital care of older, vulnerable people

I would like the best, both for me and my family and friends. What about you??

Join me in being PRO-ACTIVE in helping prevent abuse of older, vulnerable people. Please do not do nothing and wait for more abuse to happen and organisations to go into the homes/hospitals after the abuse has happened.

This is what I am asking you to read and sign. I hope that you will read it through and click on the link at the end where you can sign your name to say you support this petition. Please do not worry, myself or the public do not see any of your details, not even your name.

 

We call upon the government to improve the standard of residential, domiciliary & hospital care of older, vulnerable people, to:

•Ensure that all staff in residential, domiciliary & hospital care receive regular 1-1 supervision sessions where training needs are identified, receive positive/constructive feedback on practice, & concerns on poor practices are shared & actioned

•Require all care staff [& HCA’s] to complete & pass a nationally accredited course of training

•Set a mandatory staffing ratio of carers/nurses

•Ensure that all supervisory staff in homes & on wards receive training on leadership •Introduce maximum lengths of working hours & shifts; & increasing the minimum hourly rate of pay for care staff, nurses & HCA’s

•Establish a national register of care staff & HCA’s

•Ensure that managers/home owners are accountable for failings •Create tougher penalties for those guilty of abuse of those in their care •Ensure protection for all ‘whistle-blowing’ staff.

Improve the standard of residential, domiciliary and hospital care of older, vulnerable people, click on link and leave your name.

Thank you for your support. It is greatly appreciated. http://epetitions.direct.gov.uk/petitions/66065

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As you will recall, I was invited by Dallas Dixon, in America, to write a piece for his blog, on Elder Abuse. I would like to share this comment someone left on it-
‘Prevention begins with awareness. Books and articles like Suzan’s really do make a difference. How amazing that in the midst of her own pain of losing her mother, Suzan is reaching out to help others through spreading awareness about elderly abuse. I enjoyed reading this blog, and appreciate Dallas Dixon for making this information available.’  http://goo.gl/QavPgo

 

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I was invited by Dallas, over in the USA, to write a piece on Elder Abuse http://goo.gl/QavPgo

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Tomorrow, Sunday, I am being featured as ‘Author of the week’ on the radio with the fab Tracey Edges  on Sirenfm. Hope you can listen in, 9-11am. And  ‪#‎Koolandthegang and ‪#‎Elviscostello will be on there too!

Me! On the same show as Kool and the Gang and… Elvis Costello…?!

If only Mum and Aunty Ann were here, they would be so proud!

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