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Posts Tagged ‘Advance care planning’

We failed elderly because we were too scared care home owners would sue us, watchdog admits

Head of watchdog for care homes admits: we failed to protect vulnerable because we feared being sued

http://www.telegraph.co.uk/health/healthnews/11021374/We-failed-elderly-because-we-were-too-scared-care-home-owners-would-sue-us-watchdog-admits.html

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Improve the standard of residential, domiciliary and hospital care of older, vulnerable people

I would like the best, both for me and my family and friends. What about you??

Join me in being PRO-ACTIVE in helping prevent abuse of older, vulnerable people. Please do not do nothing and wait for more abuse to happen and organisations to go into the homes/hospitals after the abuse has happened.

This is what I am asking you to read and sign. I hope that you will read it through and click on the link at the end where you can sign your name to say you support this petition. Please do not worry, myself or the public do not see any of your details, not even your name.

 

We call upon the government to improve the standard of residential, domiciliary & hospital care of older, vulnerable people, to:

•Ensure that all staff in residential, domiciliary & hospital care receive regular 1-1 supervision sessions where training needs are identified, receive positive/constructive feedback on practice, & concerns on poor practices are shared & actioned

•Require all care staff [& HCA’s] to complete & pass a nationally accredited course of training

•Set a mandatory staffing ratio of carers/nurses

•Ensure that all supervisory staff in homes & on wards receive training on leadership •Introduce maximum lengths of working hours & shifts; & increasing the minimum hourly rate of pay for care staff, nurses & HCA’s

•Establish a national register of care staff & HCA’s

•Ensure that managers/home owners are accountable for failings •Create tougher penalties for those guilty of abuse of those in their care •Ensure protection for all ‘whistle-blowing’ staff.

Improve the standard of residential, domiciliary and hospital care of older, vulnerable people, click on link and leave your name.

Thank you for your support. It is greatly appreciated. http://epetitions.direct.gov.uk/petitions/66065

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A complete stranger, a reader, got in touch with me via my website.

‘Hello Suzan, You don’t know me, but I have read your book – ‘Beyond My Control: Why the Health and Social Care System Need Not Have Failed My Mother’ and wanted to tell you how much it has helped me.

My mother was in a care home and there were so many things that caused me anxiety and anguish about her care, I really didn’t know who to turn to at first, however, after reading the advice in your book I was able to get things moving.

There were so many issues we had to address that I was always expressing concern when things were not right for any of the residents, let alone my mother.  Eventually, they realised that I was not going to let them get away with bad care.  Again, we followed the advice in your book-we didn’t always visit at the same time or on the same day. And we saw different things happening, not all good!

I told the homes managers of my concerns. She was useless, so I did what you say in your book, I put my concerns in writing and I kept a copy. I thanked staff when they did well and told them when I knew [after reading your book] that things were not right, i.e. expecting mother to sleep on a wet, urine stained mattress [which smelt awful!] and be put to bed after tea time [although she didn’t always eat her tea, which meant she had to go right through until 7am the next morning to have something to eat]. She was put to bed at 6.30pm and lights out].

Similar to the good nurse in your book, this home had one excellent carer. She gave excellent care, empathy and understanding. She was with us at the end of mothers life having just completed a 14 hour shift, but didn’t go home as she could see that mother was nearing the end.

Thank you for sharing your story; it helped us at a time when we really needed it. The book helped my mother have a dignified death. Thank you. I am so sorry your mother did not have a dignified death. She would be proud if she knew what you were doing to help others. I will be thinking of my mother and your dear mother tomorrow, on Mother’s Day. I am shedding tears as I write. God Bless xx’

[Names omitted to protect identity].

My mum left me with a mission. A mission to ensure that no one will ever, ever suffer the way she did. A mission to get the message out there on what is good care and bad care and to raise awareness on how to report concerns if you or your loved one is receiving poor care, in a care home, nursing home, hospital or receiving care at home. ‘Beyond My Control: Why the Health and Social Care System Need Not Have FailedMy Mother’ is available in Kindle and Paperback and can be bought from various websites including:BMC jpeg

Amazon http://goo.gl/8wq4wo

My publisher’s website, Hammersmith Books ow.ly/uFIxW

4/5* reviews on Amazon ☆’Beyond My Control: Why the Health and Social Care System Need Not Have Failed My Mother’ ☆http://goo.gl/dYiXJl

But you know it’s not about how many copies is sold. It is about getting the message out there, so why not ask your library to get copies in

Beyond My Control: Why the Health and Social Care System Need Not Have Failed My Mother

ISBN no: 978-1781610282

 

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Every hospital in England will have a legal duty to own up to mistakes and errors that cause harm to patients under a new “duty of candour” to be introduced by the Government.

Jeremy Hunt, the Health Secretary, will announce today that in future all healthcare providers must notify patients about incidents where severe or moderate harm has occurred, and provide an apology.

At the same time Mr Hunt will lay out new plans to reduce avoidable medical errors in the NHS by half over the next three years – potentially saving up to 6,000 lives a year.

Under a new initiative hospitals will be asked to draw up plans to reduce medication errors, blood clots, bed sores and other preventable incidents.

Hospitals which satisfactory implement their strategies will be able to reduce the premiums they contribute to the NHS Litigation Authority, which each year pays out £1.3bn on litigation claims. However neither initiative will apply in Scotland and Wales unless the devolved Governments follow suit.

Both aspects of the plan are significant victories for campaigners who have long lobbied politicians and the medical profession for a more robust approach to dealing with cases of clinical errors.

Peter Walsh, the chief executive of Action against Medical Accidents, said it represented “potentially the biggest advance in patients’ rights and safety since the creation of the NHS”.

“For decades the NHS has frowned upon cover-ups but has been prepared to tolerate them,” he said.

“A lack of honesty when things go wrong adds insult to injury and causes unnecessary pain and suffering for everyone. Organisations that hide the truth are also less likely to learn from it.”

Mr Hunt will announce both changes at the Virginia Mason hospital in Seattle which, following the death of a woman who was accidentally injected with cleaning fluid 10 years ago, has turned itself around to become one of the safest hospitals in the world.

http://www.independent.co.uk/life-style/health-and-families/health-news/jeremy-hunt-says-hospitals-will-be-obliged-to-report-medical-errors-9215360.html

 

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Care and Compassion

by Yvonne Newbold

In writing the book, I also had to do a fair bit of research, and I wanted to read other books on similar topics. Apart from anything else, having books to read gave me an excellent distraction at times from the task in hand of getting my book finished, holy moley, any excuse! It was a brilliant excuse really, a completely guilt-free one, because it was “research” rather than “procrastination”!

So I bought 5 or 6 books covering similar, but not identical issues, and surrounded my laptop with them on the dining room table. If you ever came to my house you would wonder how I ever got anything written at all with the constant comings and goings, dramas, crises, interruptions and Toby’s screamingly loud Barney the Purple Dinosaur videos inches away from my ears. That’s not to mention the constant stream of family and friends and Uncle Tom Cobbley and all that pop in to help or for a chat or a cuppa. Piccadilly Circus is an oasis of calm compared to my dining room.

There was one book that kept disappearing. I found it on the sofa, in the other room, on the stairs, even in the loo once, in our kitchen …. people just kept picking it up and wandering off to devour it’s contents. I now have a long list of people who want to borrow it, and most of them have now gone off and bought their own copies because they are impatient to read it and finish it.

Eventually, it stayed still long enough for me to get hold of it and read it too. That was a mistake…. because I couldn’t put it down, and I finally finished it in one sitting at 5am in the morning.

It’s called “Beyond My Control” by Suzan Collins. It is a truly harrowing read, but also essential reading for anyone, like most of us, who may at one time or another, have someone we care about dependent on hospital inpatient care.

It details the story of Suzan’s mother, an elderly lady with a physical disability but who was mentally still as sharp as a pin, and how a catalogue of appalling neglect, incompetence, apathy, poor nursing practice, cover-ups and error after error caused her completely unnecessary death following months of equally unnecessary agonising pain, misery and a total loss of dignity. It shines a spotlight on what is actually happening in many of our hospitals, how management has lost it’s way, how it’s all about shifting blame or covering up rather than taking responsibility to ensure it doesn’t happen again, and how ward staff often can’t see what is so blindingly obviously neglect that they are inadvertently delivering instead of care.

The most shocking aspect of all of this is that Suzan herself has worked in the Care Sector at a very senior level for over 30 years. This is a daughter who understands the system, who knows what constitutes basic standards of care, and who is intelligent and articulate and still, despite all of this, she was powerless. Suzan did everything she possibly could to help her mother access the level of care and concern that she both needed and deserved, and yet it got them nowhere, such is the size of the machine that the NHS has become. It begs the question, if Suzan couldn’t right the wrongs, what hope have the rest of us got when it’s our own vulnerable relatives in hospital?

Well, the book addresses this aspect too. Suzan has included advice and information about how to make the system work better for all of us to learn from. This is an essential book to read, and one that is best read when everyone in your family is well and healthy, please don’t wait until there is someone you care about already in hospital and falling through the cracks where the care should be.

Reading the book certainly got me thinking about the whole issue of care, compassion and how they are so often missing from everyday life on a hospital ward. Sadly, the nursing staff almost universally entered their profession because they cared so passionately about helping people, and lightening the load of the sick, the injured, those in pain and their families. On many wards up and down the country there are still huge numbers of caring, hard-working committed teams of nurses who strive to attain these ideals. What is hard to understand is that so many of these teams are working within an NHS culture that isn’t supporting them in their efforts to care compassionately about their patients. In some areas of the NHS, nurses are finding it just impossible to care properly because the culture is blocking their best efforts. It’s not the fault of the individual nurse, it’s the fault of the system, which seems to have sometimes lost sight of what the priorities should be.

I know from my own experience with Toby having been in hospital countless times, how a good nurse can make all the difference. A smile, a pro-active approach to pain management, a comforting word here and there, the time to stop and talk and make you feel like you matter – these are all things that reduce fear and engender trust and confidence, and once that happens patients are happier, and happier people actually get better quicker because their immune systems are stronger. It’s a no-brainer, really, but somehow the system often makes it impossible for even the best nurses to do these things that they can do so well, and that simply is unacceptable.

Until the priorities change and nursing staff are allowed to care for our families and friends in the way they want to, and have the time to notice when things are amiss, and their management adopts a more open approach to admitting failures and mistakes and working hard to putting them right rather than compounding them by pretending they never happened, it’s up to us to ensure the on-going safety of our hospitalised family and friends. We all need to be aware of what may go wrong and what steps we can take to put them right. Suzan Collin’s book, “Beyond My Control” may make you weep buckets as you read it, but it may also give you the skills you’ll need to advocate effectively on behalf of a loved one. Let’s just hope what happened to Suzan’s mother never ever happens again, and that things can and will significantly improve for everyone, patients and nurses alike.

http://yvonnenewbold.blogspot.co.uk/2014/01/care-and-compassion.html?spref=tw

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‘This heart-wrenching account left me with tears streaming down my face at one point.’
Great 5 ★★★★★ review. Click on link to read full review

http://www.amazon.co.uk/product-reviews/1781610282/ref=sr_cr_hist_5?ie=UTF8&filterBy=addFiveStar&showViewpoints=0

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As a society we do not discuss death and dying openly. Today I delivered training on Person Centred Support and part of this included supporting individuals to plan for their future well-being and the importance of supporting an individual to plan for their end of life care where appropriate.

Here is an extract:

Being person-centred [1]

The national End of Life Care Strategy for England defines, a good death‟

as:

o being treated as an individual, with dignity and respect

o being without pain and other symptoms

o being in familiar surroundings

o being in the company of close family and/or friends.

We plan our life, why not plan our death?

We want a good death. We want …

  • Advance care planning[2] drawn up, which specifies my wishes as the end of my life approaches
  • Information about the dying process and the services available
  • To choose where to die, hospice, hospital or home [help is immediate in hospice and hospital]
  • Family and friends around us
  • Music of our choice playing in the background
  • Scented candles burning
  • Staff that have been trained so they can talk to us about our wishes and choices at the end of life
  • Competent staff, who treat us with dignity and respect [even if we appear to be unconscious]
  • Staff who speak to us and not down to us
  • To ensure that equipment such as syringe drivers and palliative care kits are available [if required]
  • A personal alarm if any of us become frail
  • Technology  so we can Skype my doctor, nurse etc. if we have any worries.

Decisions about my funeral:

Buried or cremated? Where do we want to be buried or cremated? If cremated where do we want my ashes scattered?

Do we want flowers, readings, music at our funerals?

What clothes do we want be dressed in. What jewellery and/or make up do we want to wear?

Decisions for after funeral:

A wake, or a celebration? People to be happy not sad.

After the funeral, drink, food, a celebration, memorial?

How we would like to be remembered, a plaque on a bench, a rose tree, a trust set up in my name?

Making a Will:

Some felt that if their late relatives had made a Will this would have made things a lot easier at the time of losing a loved one. Without the Will there had been difficulties on knowing what possessions the late relative wanted to give to whom.

References

[1] Department of Health (2008), End of Life Care Strategy: Promoting high quality care for all adults at the end of life‟, London: Department of Health https://www.gov.uk/government/publications/end-of-life-care-strategy-promoting-high-quality-care-for-adults-at-the-end-of-their-life

[2] Advance Care Planning

http://www.endoflifecare.nhs.uk/assets/downloads/pubs_Advance_Care_Planning_guide.pdf

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